Indian Heart Foundation

Support Group for People suffering from Heart Diseases

Atrial Septal Defect

I am 26 years old and just found out I have ASD. Due to the size of it, I will likely need open heart surgery to repair it. I haven't received many details about my condition yet or the surgery because I am being sent to a different cardiologist at a different hospital due to my size (I am not quite "adult" size -- only 4'10", 90-something lbs. -- so they want to make sure I'm seen by doctors who specialize in both pediatric and adult...).

So in the meantime, while I await my appointment, I've been searching online for information, which I know can lead to some questionable information of course. However, my main dilemma is nearly everything I come across on ASD is aimed at parents and focuses on infants/children. If anyone happens to know of a respectable source for information for adults with ASD, either online or in book form, could you let me know? I am really interested in the surgery process as well. I know I can just ask all the questions I have in a week and half at my appointment, but I really would like to educate myself as much as possible in the meantime, mainly because it eases my mind.

Also I'd really like to hear anyone's own personal accounts, either with ASD or open heart surgery.

Thanks

Oh, and hi! I'm new :)

Views: 11

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Replies to This Discussion

Permalink Reply by Sydney on December 31, 2009 at 7:56am
Oh wow thank you!
Permalink Reply by Danie M. on October 26, 2010 at 1:18pm
Hello Sydney,
i know its been a long time since you wrote this but am just curious to know if you have already got the solution to your medical problem.If not let me see how i can assist you.

Thanks.

Danie.
Permalink Reply by Venkateshwar Rao Mamidala on January 5, 2011 at 1:53pm
I wish you Healthy and Happy New Year 2011.   Please visit  http://successgain.us     to know about me
Permalink Reply by Venkateshwar Rao Mamidala on January 22, 2011 at 3:14pm
Please see My Blogs.  You can find a solution
Permalink Reply by abpirkani on April 17, 2011 at 3:43am
wish you all the best i just wana say its courage to live with a broken heart so Gof bless you and wish you all the best
Permalink Reply by Venkateshwar Rao Mamidala on April 18, 2011 at 2:37pm

Dear Friend

I can suggest you if you send me medical investigation reports

Permalink Reply by Xin Cheng on May 6, 2011 at 1:43pm

Hi Sydney,

 

If you can forward me your medical record, i maybe of help to provide you with optimal diagnosis and treatment infor for your reference.

 

Btw, I'm working at the biggest heart center in China, as the assistant to the director of the center, who is also the president of the Chinese Association for Cardiovascular Surgeons.  If possible, i may have your conditions be reviewed by him or any of his clinical assistants so that you can get a confirmative answer to your questions.

 

Regards,

 

Andy

 

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