Senning's
hi im Zoe i had the Senning's repair has anyone else had it
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Peter L Doswell left a comment for zoe
I guess my transposition was differant to yours as no need for a switch, being dextocadia might have helped but i have corrected transposition been like it since birth so medication keeps it ok, i did have a valve done in 1971 but since then my main…
zoe left a comment for Peter L Doswell
hi i have D-TGA
zoe left a comment for Gary Curtis
Join facebook it's on there at the top theres a serch bar type in mustard or senning's survivers
Gary Curtis left a comment for zoe
hi let me know how you can get on the mustard or senning's surviors group
zoe replied to Nicola Jane Garbutt's discussion '20 week scan and found out baby needs a double switch can anybody help me!'
Hello im Zoe i was born with dextro Transposition but the surery i had was very much like the double switch it's called the Senning's produre it involves putting a hole into the top artiums so that the blood flows the right way.
HOPE THIS…
zoe replied to Sh Bennett's discussion 'Heart Pacemakers' in the group Pacemaker Support Group
No but i had my first pacemaker put in on the 18th of aug.
Still finding out what i can and can't do
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zoe joined Indian Heart Foundation Team's group
zoe left a comment for Gary Curtis
Hi thanks for the add. Its nice to know there are others out there with TGA . Who didn't have trhe switch im also on facebook there are loads of us on there. They even have a group called Mustard or Senning's surviors which is good
Gary Curtis left a comment for zoe
Hi zoe’s it sound like you had as much fun as I have with TGA, I was like you had my 1st op at 3 day olds then had my big op when I was 6 years old, but back they could not do the switch so think I could be the only one a live with TGA and no…
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- Age
- 22
- Relationship Status
- In a Relationship
- About Me
- I was born in the early part of 1987 i was born with CHD called Transposition of the great arteries and I was rushed to Southampton General Hosptail at just 6 hours old because I had turned blue and that my sats (oxygen levels) kept dropping. My Cardic specialist later told my parents that he thought that would be the last time he would see me. He now calls me his miracle baby.
My parents weren't allowed to visit me for 3 days
I remained in Southampton for 7 weeks and during this time I had lots of tests done including a Cardiac catheterisation to buy time. When I was allowed home I had to be fed 6 times a day in order for me to weigh the right amount for my operation.
I returned to Southampton when I was 9 months old and I was orgianally going to have the switch operation but my deut got infected so my team spoke to my parents about me having a different operation known as Senning operation, which they agreed to.
(In the Senning repair, a baffle is created within the atria that redirects the deoxygenated caval blood to the mitral valve and the oxygenated pulmonary venous blood to the tricuspid valve. The anatomic left ventricle continues to act as the pulmonary pump and the anatomic right ventricle acts as the systemic pump. )
The operation itself took 5 hours.
The doctors told my parents that it had been touch and go a few times but they were very pleased with how it went.
The day I was meant to go home was Christmas Eve 1987, but just before I was about to leave the hospital and go home they needed to do my obs done wg to feel better nowhich showed that my pulse was a shocking 300, and I eventually arrived home in 1988.
I have had life long check-ups like everyone has TGA and I will still continue to have check-ups for the rest of my life.
Growing up was really hard at times with not being able to talk to anyone else with TGA because I did not know anyone else with TGA. My parents were good but sometimes they did not understand how I felt.
At school the other kids made me not want to go to school. I remember some mornings saying to my mum that I wasn't very well just so I didn't have to go in. I was very wary of going swimming as some of the other children picked on me because of my scar but I now realise that without my scar I would not be here now.
I never told my mum about being bullied about my scar as I thought it would upset her as she always told me that she would let me lead a normal lifestyle.
When I finally got to year 7, I was 11 or 12 I started to tell the other kids about my heart but suprise suprise they did not believe me so I eventually told my mum who went and spoke to the head teacher. I was very embarrased by this as I did not want anyone else involved but I am glad that she did because the head teacher put on a health day at the school so at last everyone could see that I was not making it up.
I have left my last job because of TGA as I have had to have some time off and beause they never heard of TGA they thought yet again I was making it up.
I was very pleased when I went to top school my doctors told me that I shouldn't be doing sport.
I did not have any problems untill nov 08 when i was send to my local A&E with chest pain and palpations the drs disoved that i had a pulse of 30 .
I was put on the list for a pcemaker but would need to go back to Southamopton due to the drs in my local hospital not having any experiece with anyone with Transposition of the great arteries
I have now had my pacemaker on the 18th of aug i am startin
- Occupation
- Nursing assistant
- I am interested in the following heart health related topics:
- Transpoosition of the great arteries
Comment Wall (4 comments)
- At 3:31am on January 1, 2010,
neil brewer said… - you have had a rough time,hope you are well
- At 9:07pm on August 31, 2009,
Peter L Doswell said…
- I guess my transposition was differant to yours as no need for a switch, being dextocadia might have helped but i have corrected transposition been like it since birth so medication keeps it ok, i did have a valve done in 1971 but since then my main prob is the pulmoney as it furs up with calsium so had that replaced and then that replacement, replaced, getting bad again but slowly thankfully stable for time being, this is an interesting site as we are not alone even though sometimes we think we are.
- At 1:03am on August 29, 2009,
Gary Curtis said…
- hi let me know how you can get on the mustard or senning's surviors group
- At 5:31pm on August 28, 2009,
Gary Curtis said…
- Hi zoe’s it sound like you had as much fun as I have with TGA, I was like you had my 1st op at 3 day olds then had my big op when I was 6 years old, but back they could not do the switch so think I could be the only one a live with TGA and no switch LOL. After my op had a full live up until 1999 when I become Ill ones again , when to the Dr & hospital but I was like you they thought I was making it up as with all the test they could not see anything, but my consult knowing there was. So I had to stop working.
And I do know what it like having a scar being look at all the time when you go swimming.
When I 1st was ill my pulse would go down to 30 when I was resting & Sleeping was a bit off putting when I was in hospital lol. Then I had to have a pacemaker as my pulse when up to 200 overnight
I have check-up all the time now but have been told there not a lot they can do for me now so I do the best I can now have good days and bad ones, but been having a lot of bad ones but you just have to get on with it LOL So you not the only one with TGA.
How are you feeling now? Let me know.
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